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The Long Road to My Fibromyalgia Diagnosis

Feeling Frustrated - Where Next? In my Diagnosis Journey.


The Long Road to My Fibromyalgia Diagnosis,  

When I first started experiencing symptoms in August 2020, I had no idea that I was about to embark on one of the most frustrating journeys of my life. Pain, fatigue, brain fog—it all crept in slowly, but before I knew it, my daily life was completely disrupted. The worst part? No one could tell me why.


The Endless Cycle of Tests and Referrals

Like most people seeking answers for unexplained pain, my journey started with a trip to the doctor. From there, I was sent for blood tests—lots of them. When those came back normal, I was referred to a specialist. Then another. And another.

Each time, I held onto hope that this would be the appointment where I finally got an answer. But instead, I was met with more uncertainty.

  • Blood tests? Normal.
  • MRI? Clear.
  • X-rays? Nothing unusual.
  • Endoscopies and other procedures? No abnormalities.

Each negative result should have been reassuring, but instead, it left me feeling lost. If everything looked “normal,” then why did I feel so awful?

The Emotional and Physical Toll

The longer this went on, the more exhausted I became—not just physically but mentally and emotionally too. I was stuck in a loop:

  1. See a doctor.
  2. Get referred.
  3. Wait months for an appointment.
  4. Go through another round of tests.
  5. Get no real answers.
  6. Repeat.


The waiting was one of the hardest parts. Every delay felt like a roadblock between me and the life I used to have. I was desperate for relief, but instead, I was met with skepticism, medical jargon, and more uncertainty.


The Diagnosis—And the Beginning of a New Journey

Eventually, after exhausting every possible test and ruling out countless conditions, my doctors came to a conclusion: Fibromyalgia. There was no single test to confirm it—just a process of elimination. It was a relief to finally have a name for what I was experiencing, but at the same time, it was overwhelming.

Fibromyalgia isn’t something you “cure.” It’s something you manage. And that realization marked the beginning of a whole new journey—one that I’m still navigating today.


Why I’m Sharing My Story

If you’re going through this same exhausting process, know that you’re not alone. The road to a Fibromyalgia diagnosis is long and frustrating, and it can make you feel like you’re losing your mind. But keep pushing for answers. Keep advocating for yourself.

And most importantly, remember—your pain is real. Your experience is valid. And even when it feels like no one understands, there is a whole community out here that does.   



The Light At The End Of The Diagnosis Tunnel


Does this reflect your experience? Are you or have you gone through the sometimes long journey to diagnosis? Leave a comment and share you experience!


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Location: Wales, UK

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