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Showing posts with the label chronic illness

Why Writing This Blog Helps Me Heal (And Might Help You Too)

   Why I Started MevFibro (And Why I Keep Going) When I first started the MevFibro Blog, it wasn’t because I had all the answers—or even most of them. I started it because writing helped me cope. It was my way of saying, “This is what it’s like living with Fibromyalgia and ME, and I’m figuring it out one day at a time.” Honestly, it was my life coach, Janine, who gave me the nudge. She said, “You’ve got a story worth sharing.” And I thought—maybe she’s right. If even one person stumbles across a post and feels a little less alone, then that’s something good. Blogging on My Terms One of the things I really love about blogging is that there’s no pressure to do it all at once. I can write a little, take a break, come back later. Add a photo here, tweak a sentence there.Rest, write, rest again. It’s all on my terms—and honestly, that’s how everything needs to be when you’re living with chronic illness. Top Tip From Me to You: Give Yourself Permission to Pause ...

Fibro Fog and Forgotten To-Do Lists: Learning to Be Kind to My Mind

  🌀 Fibro Fog and Forgotten To-Do Lists: Learning to Be Kind to My Mind mevFibro.blog Some days, I lose my keys. Other days, I forget what I was saying halfway through a sentence. And then there are days when I open the fridge, stand there for a good minute, and still have no idea what I was after. That’s fibro fog for you — a symptom I never saw coming, but now know all too well. When I first started noticing brain fog, I thought I was just distracted, tired, or  maybe even a bit lazy. (Hello, internalised guilt.) It wasn’t until I learned more about  fibromyalgia that I realised: no, this isn’t “just forgetfulness.” This is my brain on Fibro. Fibro fog feels like your mind is buffering. Like you’re running a race in your head,  only to forget the word for “microwave.” It’s frustrating, sometimes embarrassing,  and often completely out of your control. 🧠 What It’s Really Like It’s difficult to explain what this kind of cognitive fuzziness feels like unless y...

The Grief of Letting Go: Mourning the Life I Had Before Fibro

The Grief of Letting Go: Mourning the Life I Had Before Fibro Coping with fibromyalgia means more than managing pain—it's also mourning the life you had before. Explore the emotional side of chronic illness, from grief to hope. When fibromyalgia crashed into my life, it didn’t just bring physical pain—it brought a deep, overwhelming grief. Grief for the person I was before, for the life I thought I would always have, and for the simple joys I used to take for granted. No one really talks about this side of chronic illness. The emotional toll of losing who you once were is real and heavy. I expected to battle fatigue and pain; I didn’t expect to mourn the loss of my career, my independence, and my connection to the life I loved.   This is my honest reflection on mourning the life I had before fibro, the layers of grief it brought, and how I’m learning—slowly and imperfectly—to live alongside that loss.   Grieving More Than Loss of Health   When people hear the word grief, ...

When My GP Said ‘There’s Nothing More We Can Do’

When You’re Told There’s Nothing More They Can Do.  A personal journey through fibromyalgia and finding a way forward Hi everyone, This post has taken me a while to write—not because I didn’t want to share, but because it’s hard to revisit some of these moments. Still, I know there are others out there who may be feeling exactly how I once did: lost, scared, and unsure where to turn next. If you’re navigating fibromyalgia or chronic illness, or supporting someone who is, I hope sharing my experience helps you feel a little less alone. I still remember the day my GP told me there was nothing more they could do for me. It was shortly after I’d been diagnosed with fibromyalgia. At first, hearing the diagnosis was almost a relief—I finally had a name for the constant pain, fatigue, and brain fog that had been draining the life out of me. I thought, “Okay, now we know what this is… now we can treat it.” But then came the reality. My GP sat across from me and said they’d reached t...